Election Day, MS and Bull$#!T

Today is a day that is really important to me. As a woman, a mother and a Multiple Sclerosis patient  there are important issues that will drive me to the ballot today. First, it really wasn’t that long ago  that women weren’t allowed to vote in The United States so not doing so, in my opinion, is disrespectful and sad. There are also a lot of women’s right issues being considered by both candidates.

As a mother, I want the college education that my children have earned academically to be affordable. There is talk that the interest rate on student loans will go up depending on the victor of the day’s event. I don’t know how our country can be better if our children don’t get good educations. We want to be industry leaders in science and technology yet we don’t want to make the decisions and sacrifices to get there. It benefits us all no matter whose child figures out the next big thing or a bunch of not so big things. I’m willing to pay into that.

Lastly, I hate to ever say that I like someone having MS but the fact that both President Obama and Mr. Romney have been touched by this disease through family members gives me hope. Unfortunately, my hope seems to be getting suffocated by all the bull. First, our system of government makes it hard for things to really change. Our healthcare system is badly broken and the changes that need to happen will become victim to the people we elect to change them. The President’s family member with MS has passed on so I can’t say for sure if he really sees and knows the burden that MS puts on those inflicted physically, emotionally and fiscally. Mr. Romney’s wife has MS and so I’m sure he’s seen physical tolls of the disease and I hope he has tuned in and acknowledged the emotional struggles. I’m going to assume he has. Where Mr. Romney loses me is the financial stress and burden of MS. Being rich and having MS is a whole world of different from even being middle class and having MS. Trying to compare and truly see the space between the rich and the poor with MS takes me past anger to genuine despair. I’ve been denied insurance twice since my diagnosis almost four years ago and denied medication coverage twice while having insurance. Even when things have been at their best and I’ve had both insurance and drug coverage my copays have been ridiculous. My disease modifying medication costs $43,000 a year. Add MRIs, doctor visits and other medications and you can see that MS isn’t cheap! Our savings account has dropped over 50% in just under four years. Too bad there isn’t a light at then end of this tunnel and too bad that while people argue points that pander to one of the two political extremes people, like me, are trying to keep their balance, squelch a headache and keep some body part from going numb due to the stress of changes that needed to be made yesterday. Still, I honor my right and I do choose to believe that what I am doing today will help the future to be a little brighter, even if it’s only instilling the importance of it all in my children.

How my new life began

From our birth, life is a series of beginnings. These beginnings make up our experience which, in turn, make us who we are. Some beginnings are so profound that they change almost all of who we are, where others are hard to even notice. Two years, eight months and 29 days ago I began a new life with Multiple Sclerosis. I will reflect, predict, report, worry and cry here. I hope that maybe I will be able to turn my musings of MS into yet another beginning.